The Maryland Health Care Ethics Committee Network
and the Law & Health Care Program (L&HCP)
at the University of Maryland School of Law
Disability, Health Care & Ethics -
What Really Matters
Wednesday, April 28, 2010
10:00 a.m. - 6:30 p.m.
Thomas B. Turner Building
Johns Hopkins University School of Medicine
720 Rutland Avenue
Baltimore, MD 21205
Persons with cognitive and physical disabilities comprise a growing sector of our society. Yet, health care providers and ethics committee members may lack knowledge, skills, and insight related to disability rights and its impact on health care delivery and ethical decision-making. This conference is targeted to individuals who wish to broaden their understanding of the concerns and rights of people with disabilities in the context of health care encounters. Attendees will learn about the history of discrimination against people with disabilities and the rise of the "social model" of disability, current biases among some health care providers that disadvantage persons with disabilities, and knowledge, strategies, and resources
health care professionals and ethics committee members should have or be able to access to appropriately respect disability rights at their institutions and in health care encounters.
Check this website for updates on CMEs/CEUs for this conference. MHECN generally applies for CMEs for physicians, and CEUs for nurses and social workers. For this conference, we are partnering with the Health Facilities Association of Maryland to apply for CEUs for nursing home administrators. Certificates of attendance will be available for others upon request.
9:15-10:00 a.m. Registration
10:00-10:15 a.m. Introductory Remarks
Diane E. Hoffmann, JD, MS
Associate Dean and Director, Law & Health Care Program
10:15-11:00 a.m. Disability Prejudice and Rights in a Modern Historical Context
Steven Eidelman, MSW, MBA
11:00 a.m.-12:00 p.m. Panel Session: Voices from Persons Living With Disability
Janice Y. Jackson, MS
William J. Peace, PhD
Elizabeth Weintraub
12:00-1:00 p.m. Lunch
1:00-2:15 p.m. Concurrent Sessions A
Institutional Biases & Suggested Reforms2:15-2:30 p.m. Transition Between Session
Elizabeth Pendo, JD
Skills & Resources to Integrate Disability Rights into Practice
Theodosia R. Paclawskyj, PhD, BCBA
Lessons from the Ashley X Case
William J. Peace, PhD
Claire Roy, MA
Disability Rights-ADA and Beyond3:45-4:00 p.m. Transition Between Sessions
Nancy Pineles, JD
Facilitating Informed Decision-Making with People with Intellectual Disabilities
Judith Levy, MSW, MA
Ethical Decision-Making at the Margins
Serena San Wu, MD
Anita J. Tarzian, PhD, RN
Institutional Biases and Suggested Reforms5:15-6:30 p.m. Dinner Program Presentation
Elizabeth Pendo, JD
Skills & Resources to Integrate Disability Rights into Practice
Theodosia R. Paclawskyj, PhD, BCBA
Disability & Health Care Resource Allocation
Alicia Oulette, JD